The Slat Rat and Chronic Fatigue Syndrome and Fibromyalgia
The Slat Rat blogs the daily roller coaster ride that is life with CFS and FMS.

 



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  Wednesday, July 30, 2003


Yesterday, on NPR's Fresh Air, Terry Gross interviewed Laura Hillenbrand, the author of Seabiscuit and a Chronic Fatigue Syndrome sufferer. The interview was quite good - the first half focused on Seabiscuitity stuff. The second half covered Hillenbrand's experience with Chronic Fatigue Syndrome. Click here to listen to the interview.

It was quite interesting to hear Hillenbrand verbalize what it was like to write Seabiscuit while basically incapacitated by CFS. In particular, her vertigo symptoms were and still are, off the scale.

They also discussed Hillenbrand's recent New Yorker CFS article. Terry wondered if the meteor and the deer were fever induced hallucinations - as I also wondered. Hillenbrand is not sure - but they have become "metaphoric to her."

Hillenbrand stated that she wrote the article to give one patient's perspective and also to document what the disorder does to you. She told Terry that she could not get compentent medical care and could not get doctors to take her seriously. That is almost a universal experience among CFS sufferers. One has to look very hard to find good medical care when CFS becomes a part of one's life.
6:40:58 PM    comment []



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