It all started when I decided to go public about my need for a Kidney donor. I talked to my friend Dave Winer and he said he would publish a post in his blog .
Since then the blog has taken on a life of it’s own. The original post went out a week ago Monday, 6/30 and since then has been picked up by other blog sites around the country and literally around the globe. I’ve received emails from fellow sufferers with lots of information and words of encouragement, old acquaintances including some from Mexico and the Netherlands, people who have bought or are buying kidneys in Pakistan, Saudi Arabia, etc., and even an offer of an O+ kidney from a guy who actually lives in San Francisco. I’ve learned a ton from fellow PKD sufferers about further complications and risks associated with dialysis and the disease, which although scary, is really important to be educated about. The doctors never mention these things, unless you ask.
Now TechTV has picked up the story and they came out on Monday to interview me at home and then went to dialysis with me and interviewed my doctor as well. The story is supposed to air today, Thrusday 7/10 at 5:00pm pacific time on TechTV in the tech live section. God only knows what the final edit will contain.
I don’t really think I will get a kidney this way, but it’s been a great opportunity for me to talk about his disease, educate people about PKD and organ donation in general. If someone reads it and is inspired to sign a donor card or be a living donor for someone, it’s truly worthwhile. You know everybody can save someone’s life. I don’t know anybody who would refuse an organ if they needed one. So I think you should be willing to donate one. Click here to get information regarding being a donor.
Because of all this I decited to set up this blog myself .
I've created my story, a coverage page and a place where I'm can explain about what I'm looking for.
And lots of information links about living organ and tissue donation ,questions about kidney donation, signing a donor card and PKD .
If you'd like to contact me - please click here and send me you address information I would be happy to send you out a donor kit from my hospital. I'm looking to hearing from you
9:32:13 AM 
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