It all started when I decided to go public about my need for a Kidney donor. I talked to my friend Dave Winer and he said he would publish a post in his blog .
Since then the blog has taken on a life of itís own. The original post went out a week ago Monday, 6/30 and since then has been picked up by other blog sites around the country and literally around the globe. Iíve received emails from fellow sufferers with lots of information and words of encouragement, old acquaintances including some from Mexico and the Netherlands, people who have bought or are buying kidneys in Pakistan, Saudi Arabia, etc., and even an offer of an O+ kidney from a guy who actually lives in San Francisco. Iíve learned a ton from fellow PKD sufferers about further complications and risks associated with dialysis and the disease, which although scary, is really important to be educated about. The doctors never mention these things, unless you ask.
Now TechTV has picked up the story and they came out on Monday to interview me at home and then went to dialysis with me and interviewed my doctor as well. The story is supposed to air today, Thrusday 7/10 at pacific time on TechTV in the tech live section. God only knows what the final edit will contain.
I donít really think I will get a kidney this way, but itís been a great opportunity for me to talk about his disease, educate people about PKD and organ donation in general. If someone reads it and is inspired to sign a donor card or be a living donor for someone, itís truly worthwhile. You know everybody can save someoneís life. I donít know anybody who would refuse an organ if they needed one. So I think you should be willing to donate one. Click here to get information regarding being a donor.
Because of all this I decited to set up this blog myself .